Couple days in may

How I wish I could follow me around with a video camera. I wouldn't believe my life if I wasn't living it.
I'm sure everyone lives their life making constant decisions about what to do next in their day.
There is so little actual time that I get to do what I need to that it feels like every decision is critical to my life- should this therapist come at this time or squeeze them in someplace else? But then I can't get abcd done, or the rest of the crazy alphabet of my life.
By the time I get SA off to school, change isaac, do his 2 hours nebulizer treatments (while texting 20 ppl & doing email & good thing there's drinkable yogurt & protein bars),  change him, get him up in his chair & do all of his am care its 12pm
If a therapist is coming I get a little time to
Text more ppl
Get dressed
Do laundry
Make phone calls
Do paperwork
Clean up
Go to the bathroom?
Text
Do laundry
Manage crisis x- we ran out of meds, wheelchair broken, what do u mean we have no feeding tubes
Order something online- shoprite order, ran out of variety of stuff isaac needs from Amazon, what do you mean its summer and sa has no clothes that aren't a uniform & only 1 pair of shoes that got ruined in the mud
Text
Rinse, repeat
Oops, isaac needs suctioning, meds, flush, and ANOTHER neb treatment
Hey! How is it 2pm & I have 5 errands to do with isaac and get sa by 345??
But I didn't get to do anything for the construction!!
Run run run
Skip errands 3 thru 5, they'll happen eventually. Or not
Get her from school
Snack, homework, shes bored
Ha ha, I thought I was gonna sneak in another phone call. Crazy eli
Feed her supper
Dont forget isaac- another neb, flush, meds
Text
Bathtime & bedtime already?!
Oh yeah, all that texting got me somebody to bathe her so I can get isaac ready for bed
Another 2 hours treatments & meds
10pm- eat supper? Wash dishes? Put up curtains? Make a phone call?
Give more meds, put on his braces, hold him while he has seizure, text (remember when there were no cell phones!)
1am fill last feeding
Try to sleep?
Yes, I know I'm writing this at 4am but that cuz I took a nap from 12-3 then had to put away food and shower
Oops, sa up. Gotta go
Next installment- the mystery of all those texts....